Casper Schoemaker, PhD is an advisor on patient involvement in research at the Wilhelmina Children’s Hospital of the UMC Utrecht and INVOLV.He was trained as a researcher and he used to be a senior researcher and project leader at the National Institute for Public Health and the Environment (RIVM), in the Netherlands.He is the father of a JIA patient, and a lung patient himself. Casper represents the Dutch JIA Patient and Parent Association in several research projects and the Dutch JIA guideline panel. He lead a national priority-setting partnership to establish a research agenda for JIA, following the James Lind Alliance method. As a member of the Scientific Advisory Board of the Lung Foundation of the Netherlands, he appraises research proposals from a patient perspective. More than 10% of (bio-)medical students and young researchers live with a chronic (mental or somatic) condition. They have a unique double talent: they are both future health professionals and experts by experience. Casper – a double talent himself - aims to turn their experiential knowledge into a strength or talent. Three years ago, he developed a course for biomedical master students living with a chronic condition. Last year, medical double talents gave guest lectures for all 2nd-year medical students in Utrecht. Attendees of the summer school living with a chronic condition are invited to co-design the 2nd part of the session 'Power of diverse perspectives' on Wednesday. If you are interested meet with Casper or mail him:
[email protected].
